15-17 MAY
For the 2016 version of the awareness day hae day :-) HAEi and the Spanish association AEDAF will be bringing together HAE patients, relatives, caregivers, doctors, nurses, and industry for a mutual experience: A walk on the pilgrimage route El Camino de Santiago (The Way of St. James) to the shrine of the apostle Santiago (St. James) in the Cathedral of Santiago de Compostela in the northwestern part of Spain.
Over three days (15 to 17 May 2016) the participants will walk three fairly short legs of the Camino (~20, ~15 and ~13 km), allowing everyone interested to take part. And there will be ample time to see things, go places, rest, and just be together.
At this moment more than 80 people have signed up for the walk – coming from Argentina, Australia, Brazil, Canada, Denmark, Hungary, Italy, Japan, Mexico, New Zealand, Spain, Sweden, USA, and Venezuela.
18 MAY --- 16Q1 PHARMING FIRST QUARTER RESULTS
19-22 MAY:
HAEi – the international umbrella organization for the world’s HAE patient groups – cordially invites you to attend the 2016 HAE Global Conference which will take place in Madrid, Spain, 19 – 22 May 2016
Following the great success of our 2012 HAE Global Conference in Copenhagen and our 2014 HAE Global Conference in Washington DC, we look forward to welcoming you to this third HAE Global Conference. The conference brings together patients, care givers, health care professionals, and also invites industry representatives, to learn more about HAE, share experiences and knowledge in a friendly atmosphere conducted and driven by the patient community through HAEi.
The theme for the 2016 HAE Global Conference is “Creative Advocacy for Expanding Access to Therapy,” where our aim continuously is to find ways to improve time to diagnosis, to secure life saving therapies and get funding for these – allowing HAE friends around the world to lead a safer life and fulfill their life’s potential.